Tuesday 24 March 2015

My journey with depression, chronic fatigue syndrome and borderline personality disorder. Part 8.

I realised I had created all the bad in my life by not caring enough about myself or valuing myself. For a long long time I didn't love myself. That was my biggest mistake.

Self love can be difficult. We aren't raised to think about loving ourselves. It's self indulgent and somewhat narcissistic. I hated myself for years, since I started to have emotional problems at age 14 because I wasn't viewed as being 'normal' and mocked by people for self harming. I hated the way I reacted to people's opinions of me and was a people pleaser. And I just expected to be treated the same way I treated people in return. That's not how it works.

I wanted my ex to file for divorce so we could both move on and be rid of each other. Plus I wanted him to pay for it as I had paid for the wedding. We sold the house and he wouldn't settle for the divorce until we agreed on how the money was divided. Baring his solicitor is cutthroat, they went for the jugular. He wanted all the money form the sale of the house. He had my daughter living with him so he could take me to court and have a good case, plus I have a good pension so he was entitled a cut from that anyway to the tune of 10K. It was so stressful as I had debt I needed to settle so couldn't hand to all over. He threatened to go for half my pension which was worth a heck of a lot if I didn't agree.

We argued over and over it and my solicitor always needed chasing up so the stress was awful. I managed to get him to agree to giving me a quarter of the money if he left my pension alone. I had real trouble dealing with this. I was very bitter. I had had a house when I met my ex and had it for 10 years. I bought it with the money my dad had given me after my mum died and the house had turned it into good money so we used some of it to buy the next home we lived in. We put down a huge chunk towards it. Had I known then that he would do this I would have gotten a prenup.

I had always been crap with money and always getting into debt and getting myself out of it but my ex had never gotten into much debt. He was using his credit card to pay for the DIY stuff needed for the house renovation so we eventually sold my house and paid off what we owed.

When he had gotten made redundant he'd had a payout of 20k. I hardly saw any of that. Within three years of being with his new gf he had blown 32k. The money from the sale of the house was going to go on debt he had accrued living his new life. It annoyed me as I would be left with very little. He had already taken so much off me, this was just another stab in the back. Maybe he was punishing me for cheating on him and treating him so badly? He would never admit it.

After a while of being cut up with anger and bitterness for so long I decided enough was enough. I had attracted my ex into my life when I was lonely and desperate. I had attracted MM into my life when I was unhappy and miserable. I had attracted bad guys into my life when I was not in a good place. It had all been down to me and my lack of self esteem and self love.

So many bad things had happened over the past few years that I was sick of constantly feeling the victim. I guess I had a revelation. My life with my OH was going really good. We were looking forward to a lot of good times ahead. A future I had wished for many years ago. I had started coming off the medication over 14 months ago and had finally got off the venlafaxine totally. It took so long as I get 'brain zaps' coming off them. Brain zaps are difficult to describe but I'm sure you know what I'm talking about if you've had them. Coming off medication too quickly can cause these to be awful. So I took my time and reduced really slowly. I also noticed not taking as much venlafaxine made my quetiapine more effective so reduced the dose of that too.

Although I was having a few down days, by now I was feeling a lot better but I was also feeling numb. I didn't look forward to the day. I just wanted to sleep and be out of it but I wasn't sad. Just really tired and if I was awake I would think too much but I had trouble feeling emotion except anger and hatred. I was suffering anhenoia, which is the inability to feel pleasure. I decided my pills weren't helping that.

Being on such a high dose I think contributed to my bad gut situation. I was severally constipated on the high dose along with the quetiapine and was fed up with it. I felt the time had been right to reduce the doses. I wouldn't recommend that to anyone, it was just something I did. I was a fed up with the NHS and lack of input from them also. After my OD and seeing a very nice psychiatrist once I had no further contact for months. He was instrumental in helping me alter my shifts at work then having time off work but then I didn't hear from him for months. It wasn't his fault as he'd had to take sick leave and there was no one to cover him. There are few and far between doctors and nurses, who in my opinion, make a difference. He was one of them.

Before I took the OD I had asked to be referred back to my psychiatrist  but she had left so I turned up for an appointment which had been a cancellation. I was grateful for it until I got there and was surrounded by elderly patients in the waiting room and felt something was wrong. I got called into the office and met with a brusk german doctor who asked me what the problem was so I explained. I asked if my request for psychotherapy had been sent in by my last psychiatrist and he couldn't answer it. He flicked and flicked through my notes and saw I was taking a bigger dose of venlafaxine and quetiapine. I got pretty emotional telling my story and he showed no empathy whatsoever. He had an assistant in the room with him and neither of them offered me a tissue when I had tears and snot running down my face and couldn't find one in my bag. He simply just shrugged his shoulders and said there was nothing more they could do. I left in tears and felt once again let down by the NHS for their lack of support.

I googled the consultant when I got home and found him to be an Alzheimer's specialist. I complained to the PALS (patient liaison service) that he wasn't an appropriate consultant for me to see and they managed to get me transferred to the new more understanding one. However in 2 years I have only spoken to him once and seen hm once. I saw his registrar last year sometime and said I what I doing with my pills and she didn't seem bothered. The language barrier was a bit tricky anyway so and I kept having to repeat myself. She said I would see her again in a few months and since then I must have had 8 or so letters with appointments and cancellations with no further appointment being sent through and to be honest I'm not chasing it as I might just get another wasting time appointment that someone else could do with more than me. I have washed my hands of psychiatry for the time being. Never say never.

The  christmas my OH and I were first together he bought me a newer version of the SAD (seasonal affective disorder) light I had. Mine was made of wood and about 11 years old and this one is light weight and portable (ish). I had been neglecting using one for a couple of years because I had nowhere to put it at my house and thought, bloody mindedly, that it didn't work. But now I am religious with it. I also stopped using it as I wouldn't get up until late morning/lunch time and they can cause insomnia and I didn't want any of that. Now I had the sleeping thing under and bit more control, it wasn't a problem.

I know I sound hypochondriac again but I also believed, through the stress that I had adrenal fatigue. It's not recognised by the medical profession so again I wasn't going o mention it to my GP or indeed anyone else. Adrenal fatigue causes all sorts of problems and can take forever to get back to normal. The symptoms are much the same and can be confused with chronic fatigue and depression.
Are you:
  • Tired for no reason?
  • Having trouble getting up in the morning?
  • Depending on coffee or colas to keep you going?
  • Feeling run down and stressed?
  • Dragging through each day?
  • Craving salty or sweet snacks?
  • Struggling to keep up with life's daily demands?
  • Unable to bounce back from stress or illness?
  • Not having fun anymore?
  • Experiencing decreased sex drive?
  • Simply too tired to enjoy life?
But the things that stood out were that I had fried nerves and become really really inpatient and every thing got on my nerves and when I was due my period well it wasn't only horrendous for myself but everyone around me. I'd experienced similar to this in the past but not the frayed nerves as such. I had always known to be inpatient but this was another level.

I have embarked on diets before for illness such as depression, gut problems and chronic fatigue so once again I embarked on one for this. I started what is known as the paleo or caveman diet, which involves basically eating a lot of meat and fats and no carbs. I lasted about a week as it's expensive, I can't bare fat on meat and the mere smell of it cooking started to make me retch. Plus I was wrestling with my conscience over eating meat as well.

I have been known to over eat in the past and starting a new relationship meant eating out a fair bit and more wine and a side effect of adrenal fatigue is weight gain due to cortisol levels being really high. I was eating without thinking at work biscuits, cakes, anything just to try and get a little energy. So subsequently piled a lot of weight on in a short space of time. Now I look at what I eat and generally eat as healthy as I can but smaller portions, I'm not saint though and alcohol is still a draw for me although I am cutting it right down for obvious reasons.

My other coping mechanisms come in the form of self help and mainly gratitude. I revisited a book called The Secret, which I had read a few years ago but never practiced. In another book int he series called The Magic, it talks about writing down everyday, things that you are grateful for. You have to list 10 things, every day. Now gratitude is something alien to me. I've always thought that we should 'do unto others....' and 'you get what you give' kind of thinking but this teaches you to do it in a new way. It teaches you to give wholeheartedly and with love and expect nothing in return. Sounds easy but takes some practice.

Being grateful for the smallest things really help me stay focused on the here and now. A bit like mindfulness but I don't focus on my body and what's going on it, more of a not worrying about the past or the future as much as I did. I was great at beating myself up about the past and worrying needlessly about the future. I would worry about so many things. My daughters future, which sounds normal but obsessively worry about it and things like that shops weren't busy enough. I was pretty anxious before my last overdose and the only thing that would help it was sleep.

Now I can cope with it on a daily basis by focusing on what I do have than what I don't. For example.

1. I am grateful today that I woke up without a headache.
2. I am grateful today I slept all night.
3.I am grateful today that I have enough energy to shower and wash my hair.

You get the picture, that kind of thing. Not beating myself up about the fact that I didn't have the energy to not do other things than wash my hair and shower. If we focus on what we can't do, what we don't have then we attract more of that into our lives. Whether you believe that theory or not, it really helped me. I was fed up with attracting things into my life I didn't want.

I also started practicing more the Law of Attraction. Again, it might seem a bit new age for you but honestly it works. Basically you think about what you want, write a list about it and be specific about it, focus on it but not obsess over it; it's important not the be so desperate for what you want, it won't happen if you are desperate. The link above sums it up perfectly. Again it takes practice but it's worth it. Changing a mindset you have had for years does not happen overnight and takes patience and practice.

Try it with a simple thing at first and see for yourself. If it doesn't work keep trying. It may not happen instantly. I've done it with cars, jewellery, books, movies, all sorts of things. I have had an image in my head of what I want and known that it will really happen and I've believed that in my heart and it has happened. A couple of cautions, be careful what you wish for and stay away from scams. If you are gullible, naive and vulnerable you can easily be taken advantage of, as I have been. The key is to looking for the clues but knowing when it is right, if it doesn't feel right then stay away from it.

It helps that the stress in my life is a lot less than it was. The emails (by now i had blocked the ex and his gf on all communication sites other than my ex on email) had dried up, I was divorced, finally, more financially secure, looking forward to the future. I still have 'melt downs' but they aren't as often and I bounce back from them a lot quicker. I practice gratitude ever day and look for the positive, not negatives in every situation.

I also take supplements for fatigue and PMT, which include magnesium, evening primrose oil, vitamin c and co-enzyme q10. I did try using white tea instead of black tea and switching milk to non dairy but again I found I couldn't keep it up. I also learned to love myself, warts and all. If I can't love myself then no one will love me the way I want.

I have also been introduced along the way to Brene Brown and have always been a fan of Elizabeth Gilbert who have been a greta inspiration to me. I have learned to get people out of my life that suck the life and soul out of me and see things that come my way as opportunities rather than life threatening events or catastrophes.




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